SMA EUROPE

SMA Europe is a non-profit umbrella organisation of 30 spinal muscular atrophy (SMA) patient organisations from 28 European countries. We work to bring effective treatments and optimal care to everyone living with SMA.

Our members are national patient organisations, led by people living with SMA and their families, who put the voice of those living with SMA at the heart of everything they do. They advocate and campaign at the national level while also engaging and influencing all stakeholders and decisions at the European level, through SMA Europe.

Together, through greater understanding, we will create a better world for all those living with SMA.

We work to bring breakthrough research, effective treatments and optimal care to everyone living with SMA.

All together. One goal.

SMA Europe aims to:

• Represent the interests of people with SMA among all stakeholders in European health policy

• Develop a strong evidence base for the needs and wants of patients and their role in research

• Support, stimulate and promote patient-relevant research, drug development and clinical trials

• Ensure patients across Europe receive timely and continuous access to diagnosis, treatment and care

• Communicate and promote comprehensive quality information about SMA among all relevant stakeholders

• Provide quality information, educational and outreach programmes to member organisations, including knowledge transfer, information exchange and best practices with and among member organisations

• Collaborate on projects for the benefit of the SMA community, also on a global level

• Build and maintain a responsible, sustainable and impactful organisation with one, unified, goal.

REGISTRATION
Registration Fees

The registration includes:

• Participation in all scientific sessions
• Programme and congress related documents (certificate of attendance, badge,..)
• Coffee break and lunch as indicated in the programme

Cancellation Policy

• For cancellations notified before 1st January 2026, the entire amount paid will be refunded less any banking costs.
• For cancellations notified after 1st February 2026 but before 1st March 2026 midnight, 50% of the amount paid will be refunded less any banking costs.
• No reimbursements will be possible for cancellations notified after 1st March

All cancellations should be made in writing and sent by e-mail to the Conference Secretary: sma-europe.events@medicongress.com

PROGRAMME

The updated programme is available on the congress website.