Banner of the 4th SMA Congress - Scientific International Congress on Spinal Muscular Atrophy


SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other healthcare professionals from all over the world to attend the 3rd International Congress on Spinal Muscular Atrophy, from 14th to 16th March 2024 in Ghent, Belgium.

SMA Europe is the European umbrella for national SMA patient organisations. One of its core activities is to foster patient-relevant research in the field of SMA, to communicate the value generated from research, and consequently to ensure future support for research within our community.

The goal of our scientific congress is to bring together an international and multi-disciplinary group of scientists and health-care professionals. We provide a forum for them to present and exchange their breakthrough ideas on SMA, especially also the patient-relevance of their findings, and to cement existing and stimulate new collaborations.

Our scientific congress features highly respected, internationally renowned speakers. Equally important, it is a platform for talented young researchers. Together with health-care professionals and patient experts, they will discuss, debate and dissect significant new developments and advancements relating to SMA. Moreover, they will share their visions for the future of SMA research. By providing an opportunity to exchange scientific evidence and clinical experiences, we trust that the conference will lead to ever-improved treatment and care for patients living with SMA.

The International Congress on Spinal Muscular Atrophy is a unique opportunity to meet face-to-face with colleagues who are as passionate about advancing the field of SMA, as you are. SMA Europe very much looks forward to welcoming you in Ghent  next year!



SMA Europe is an umbrella organisation which unites 26 patient and research organisations focusing on spinal muscular atrophy (SMA) from 24 countries across Europe. The member organisations differ in terms of how long they have been established, in size and also in scope of activities. SMA Europe is managed by a Board, which meets monthly and two members of staff.

SMA Europe strives for earlier diagnosis, effective treatments and optimal care for people living with SMA. We do this by elevating the patients’ voice, by empowering member organisations to advocate and campaign at a national level and by harnessing that network to advance research and influence stakeholders at a European level.

SMA Europe aims to:

  • Represent the interests of people with SMA among all stakeholders in European health policy

  • Develop a strong evidence base for the needs and wants of patients and their role in research

  • Support, stimulate and promote patient-relevant research, drug development and clinical trials

  • Ensure patients across Europe receive timely and continuous access to diagnosis, treatment and care

  • Communicate and promote comprehensive quality information about SMA among all relevant stakeholders

  • Provide quality information, educational and outreach programmes to member organisations, including knowledge transfer, information exchange and best practices with and among member organisations

  • Collaborate on projects for the benefit of the SMA community, also on a global level

  • Build and maintain a responsible, sustainable and impactful organisation with one, unified, goal.


Registration Fees

The registration includes:

  • Participation in all scientific sessions
  • Programme and congress related documents (certificate of attendance, badge,..)
  • Coffee break and lunch as indicated in the programme

Cancellation Policy

  • For cancellations notified before 1st January 2024, the entire amount paid will be refunded less any banking costs.
  • For cancellations notified after 1st February 2024 but before 1st March 2024 midnight, 50% of the amount paid will be refunded less any banking costs.
  • No reimbursements will be possible for cancellations notified after 1st March.

All cancellations should be made in writing and sent by e-mail to the Conference Secretary:


    The updated programme is available on the congress website.